Soon there will be the first nationwide population based study on the health of transgender populations in the US. The study is a collaboration between the Williams Institute at UCLA, Fenway Institute, and Columbia University, and will examine the healthcare needs of trans people. The study will also provide a better estimate of the size of transgender populations within the US.
I interviewed two of the study’s investigators a year ago. We talked about the the study’s purpose and goals.
Jody Herman, PhD., Scholar of Public Policy, Williams Institute at UCLA School of Law, University of California, Los Angeles
Sari L. Reisner, Sc.D., Affiliated Research Scientist at The Fenway Institute, Fenway Health, Harvard University and The Fenway Institute, Fenway Health
For more information about Trans-Pop can go to their website.
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Experts Release New Report Highlighting the Lack of Population-Based Data about Transgender People and Other Gender Minorities
Current survey practices fail to identify transgender and other gender minority respondents
Los Angeles—A new report released today by the Gender Identity in U.S. Surveillance (GenIUSS) group highlights the lack of survey measures to identify transgender and other gender minority respondents in most federally-supported population-based surveys. This groundbreaking report, entitled Best Practices for Asking Questions to Identify Transgender and Other Gender Minority Respondents on Population-Based Surveys, examines current practices in population-based surveys to see which surveys currently include measures to identify transgender and other gender minority respondents and offers expert recommendations for including sex and gender-related measures in population-based surveys.
The 2011 Institute of Medicine report on LGBT health specifically identified transgender health research as being a high priority. However, without adequate measures to differentiate between trans and cis people such research would be very difficult to conduct.
The report offers best practices for identifying transgender and other gender minority respondents in population-based surveys. Among the best practices delineated in the report, the most effective is the “two-step” approach. This practice includes measures of self-reported assigned sex at birth (the birth recorded on one’s original birth certificate) and gender identity at the time of the survey. There are also recommendations on the best way to place and integrate sex and gender-related measures into population-based surveys in this report.
Among the federally supported population-based surveys that currently do not include measures to identify gender minority respondents are the American Community Survey, the Current Population Survey, and the National Health Interview Survey, and others.
The proposed guidelines are an important step in working toward the the development and inclusion of transgender health within national health studies.
The full report is available here: http://williamsinstitute.law.ucla.edu/wp-content/uploads/geniuss-report-sep-2014.pdf
The Gender Identity in U.S. Surveillance (GenIUSS) Group is a multi-disciplinary and multi-institutional group of experts convened by the Williams Institute to increase population-based data about transgender people and other gender minorities by advancing the development of gender-related measures for population-based surveys, with a particular consideration for publicly-funded data collection efforts.